Saturday 31 October 2020

October 30th 2020 - The "Big Bazooka" Tablets arrive

The enzalutamide tablets arrived yesterday and I have taken the first dose. I now have quite a major intake of pills what with these four tablets daily plus the bicalutamide and my statins I will start rattling when I walk. I have also decided to take some vitamin D to make up for the lack of sunshine.

I will now need to be on the lookout for side effects. I will need to take my blood pressure daily as the enzalutamide can cause this to increase.

The most obvious side effect of have noticed so far is a tendency for hot flushes which can be quite uncomfortable in bed. I also think I have an increased waistline although that may be a consequence of the lockdown.

These tablets will be taken for the next two to three years so I hope the side effects are manageable. Concern about the side effects has increased my stress level as I wait and see what happens. 



Tuesday 27 October 2020

October 26th 2020 - An Optimistic Consultation at Velindre but a Long Way To Go

 D Day or is it C Day? My first visit to Velindre and I was not really sure what to expect. It was very busy with lots of miserable looking patients waiting for tests and consultations. There was an air of disorganisation as the staff bustled about calling patients’ names often to no avail. The staff are really friendly and do their best in quite depressing surroundings.

I sit, socially distanced,  for half an hour or so as I wait to hear my fate. There is a slight diversion when I am called to have my blood pressure and weight measured but then it is back to staring at the wall rather than looking around at my fellow sufferers.

Finally, I am called and take a seat in a small treatment room. My heart is thumping as, being a typical Welshman, I fear the worst. Elin, the oncologist, comes in with my file and I try and judge if it is going to be bad news.

She smiles and asks me how I am and then tells me the first bit of news. It is good news - my PSA level has dropped to 0.6 which is as they would have hoped with the hormone treatment. I heave a sigh of relief.

I then hear about the next phase of my treatment as obviously I am far from out of the woods. I will stay on the current hormone treatment for the next three years. In addition, I will start on a relatively new drug, enzalutamide, which is another hormone treatment and I will be on that for two years. This is an expensive treatment and it sounds if the drugs will be delivered to my house under armed guard. I am extremely grateful to be given this treatment even though there may well be side effects. Potential side effects include: raised blood pressure, weight gain, hot flushes, skin rashes and general fatigue. I should monitor my blood pressure and report any significant issues immediately. I will have a follow up phone consultation in a couple of months to check how things are progressing.

I will also be undergoing a course of radiotherapy early in the new year to try and kill the cancer.

So that was that and I was soon driving home. I did feel that a significant weight had been lifted from my shoulders but I am well aware this is just the first skirmish in a long battle to come.



Monday 26 October 2020

October 18th 2020 - The Second Oncology Appointment is Looming

Another week has gone by and I do feel a bit better than last week with the headache gone. I still do not have a great deal of energy but that might be due to the remnants of Covid or just getting old. This week sees the next blood test and the following Monday the consultation in Velindre. There is some uncertainly about the impact of the impending Covid lockdown which may make things more difficult.

The waistline seems to be expanding and there are the occasional hot flushes to contend with which means that the hormone therapy is at least having an effect. None of this is unexpected of course. I am feeling really impatient to know if the therapy has had an effect on the cancer. The blood test should give some answers. 



October 10th 2020 - I have the Second Hormone Injection

 I had my second LHRH injection yesterday at the GP surgery. I have to admit that I am now feeling pretty average overall. On a scale of 1-10 I feel about a 4. I have a headache behind my right eye and the skin above my right eyebrow is tender to the touch. I have dark circles around my eyes and I also have what feels like a stiff neck. This coupled with various other muscle aches and a general lethargy is making me feel down. I am not sure whether this is to do with the hormone therapy or maybe even to do with the remnants of my suspected Covid 19 symptoms in March. Anyway, I am not exactly full of the joys of spring. I am still managing my 45-60 minute walks in the morning and doing my press-ups but I am not really enjoying this as I used to.

For the time being, I have decided to grin and bear it and discuss the possible side effects of the treatment during my appointment with Velindre in a couple of weeks.



September 27th 2020 - Life Goes On

 It seems as if I have been marking time or at least time is passing very slowly. So far, the only discernible effect of the hormone treatment seems to be a thickening of the waist. With the reopening of the leisure centres I had been able to get back to the gym and also to do some swimming which had made a big difference to my outlook. Just I was managing to get into a routine combining golf, gym, swimming and walking there was a spike in the COVID 19 incidents and Newport went into lockdown. This meant no more visits to the leisure centre as it is some quarter of a mile or so outside the Newport boundary. This is very frustrating.

The next hormone treatment injection is scheduled for October 9th and then I will need to get a blood test done before my first visit to Velindre on the October 26th. As I said above, this seems a long way away as life grinds almost to a halt. COVID is not helping matters that is for sure.

I did have my flu jab on September 23rd and felt a little under the weather for a couple of days afterwards.

Apart from this, I don’t feel any better or worse in myself but there is this nagging feeling of the alien growing inside of me and an overwhelming desire for the radiotherapy to start. I know I need to be patient but it is not easy! All this waiting seems to ramp up the stress levels.



September 9th 2020 - I Finally Have the First Hormone Injection

 I have had the first injection at last. The injection was into my stomach and hurt a little. I will have an injection monthly from now on with the entry point alternating between the left and right side of my stomach. Sadly, it is not possible to set up the appointments for this more than a couple of weeks in advance so it looks as if I will be spending a lot of time on the telephone!

I asked about a prescription for the tablets but that needs a phone call from a doctor to organise. That should happen tomorrow.

So now it will be waiting to see what the side effects of the hormone treatment will be – chemical castration by any other name.



September 7th 2020 - Success At last

 The good news is that the nurse from the surgery rang this morning at around 10.00am. The bad news is I am back to square one! The GP surgery is still maintaining that they have had no letter from Velindre so cannot proceed. This is even though the man I spoke to in the surgery on Friday seemed to be reading the very same letter from his computer screen. This is fast becoming a farce and I really don’t know what to do about it. The nurse did say that she would investigate and report back before the end of the day but I am not really holding out much hope.

How could it be this difficult? So much for our brilliant NHS. Let us hope that the cancer is growing as slowly as this rigmarole is progressing.

Oh, ye of little faith. The surgery rang at 2.00 pm – it is all systems go for 2.00pm tomorrow. Movement at last. Not sure what went wrong but I won’t dwell on that.



September 4th 2020 - Still Trying to Organise That Hormone Injection

 No phone call from the nurse so it is back to ringing the nurse. This is getting past a joke!

This time I must have pressed the wrong option button on the phone. I get through to the home appointments line. The good news was that I actually talked to someone who was helpful. He checked that the information from Velindre was on my file and confirmed that they could carry out the required injection. So far so good.

Then came that dreaded statement, “I will get the nurse to ring you on Monday to discuss it”. I told him I had got this stage a few times before and was getting more and more frustrated.

“The nurse will need to check with our pharmacy before we can go ahead,” he said.

“Can we just book an appointment so I can plan ahead,” I whimpered.

“No, you will need to speak to the nurse but there are plenty of appointments available. I will make sure Emma rings you on Monday,” came the reply.

Is this a success? We shall see.





August 28th 2020 - You Need to be Persistent (and Patient)

 I got in touch with Velindre to make sure my notes had gone to the GP. They had but Laura helpfully said that she would give the surgery a ring and FAX/email the information to them. They are very helpful at Velindre.

I decided to give the GP surgery a ring to try and make the appointment for the injection. On my first attempt I was kept hanging on the phone for 40 minutes and eventually gave up. With my second attempt an hour or so later I finally got through but was told that I couldn’t make an appointment without speaking to the nurse first. The nurse would not be available until the following Tuesday or Wednesday and would give me a ring then. It is really frustrating another week will slip by and I still haven’t made an appointment for my first hormone injection. No doubt when I do speak to the nurse, I will have to wait another week for an appointment. You need the patience of Job when dealing with GPs these days! Perhaps I need a frustrationometer as well.





August 26th 2020- Liaison Between Velindre and the GP Is Frustratingly Slow

 Well a week has passed since the diagnosis and it seems like an eternity. I have started to take the pills for the hormone treatment but can feel no discernible effect. I don’t suppose I could expect to but the impatience to get on with things seems to build day by day. It is only a week but time seems to be ticking away inexorably.

I phoned the GP surgery yesterday morning to arrange an appointment for the first hormone injection. After twenty minutes of horrible music on the phone the receptionist answered. The doctor would need to ring me that afternoon but she could not be sure of when. The doctor rang just after three but couldn’t really help. My medical history had not been updated following my discussion with Velindre so there was little he could do. He said that he would arrange for a nurse to give me a ring the next day as they were the people who administered the injection and knew what was what. It is only a day I know but when you are a mode where every day counts it does try your patience. In these days of computers I would rather have hoped that my medical records were up to date. It’s only a week – there goes my patience again!

Let us hope that I can organise the injection some time soon.

I did receive a letter from Velindre with my next appointment – 26th October- and a request to have a blood test done before then. At least Velindre seem to have a grip.

Strangely my stress levels seem to have increased. I need to be more patient – is that why patients are called patients I wonder?



August 22nd 2020 - The Hormone Treatment Commences

 The prescription for the hormone treatment arrived yesterday and I have started taking the tablets. Nothing to note yet as I would have expected. Lots of people have been in contact wishing me well which is nice.

Every ache and pain that I feel brings the harsh reality of the fact that I am a cancer patient and no matter how hard you may try I will never be able to forget it. It is not going to go away without one hell of a battle and even then there are no guarantees.



August 19th 2020 - Telephone Appointment with the Oncologist

 An agonising wait for the phone to ring. The call eventually came 20 minutes or so late and was not from Dr. Palanniappan as I expected. Dr Elin Evans rang and had a positive, soothing and professional manner.

The good news is that the feature observed on the MRI scan in my stomach has come back negative in the PET scan and is not related to my prostate cancer. The bad news is that there is evidence of lymph nodes in my pelvic area so the cancer has spread beyond my prostate. This should be treatable with radiotherapy.

My Gleason score was 4+3 or 7 and was moderately high so not a bad result. I had steeled myself for the lymph nodes so was not phased by the news. It is good that it is out in the open.

So, to the treatment. This will commence almost immediately with hormone therapy. I will receive a prescription for tablets which I will take for two months. The course of tablets will last a minimum of six months and more than likely for three years. The aim is to reduce testosterone levels and so shrink the prostate. Apparently, it will bring about the male equivalent of the menopause and I can expect hot flushes, moodiness and weight gain. After a week or so of tablets I need to attend the GP’s surgery for a hormone injection.

After two months, I will have a further consultation where the next phase of treatment will be confirmed. This will definitely be a course of radiotherapy. Chemotherapy may be considered but it is currently discouraged because of the COVID situation. The doctor was also optimistic that I might be able to be given abiraterone which has been shown to be highly effective. Abiraterone and similar drugs are normally not available on the NHS due to the cost but in the current COVID situation they are available at least until the end of the year.

So, there we have it! It is certainly not good news but it could have been a lot worse. I feel a lot better about things and I am relieved that something is going to happen almost immediately. My stress levels have subsided considerably even though I recognise that I have a hard battle to fight.



August 17th 2020 - The PET Scan

 This is the day of the PET scan in the University Hospital. It was my first visit to the hospital and I was astonished that the initial impression was like visiting a resort large hotel in Spain. The sun was shining and people were seemingly having a great time around a lake just outside the main entrance. Inside the main concourse was more reminiscent of an airport with shops and food and drink outlets. You certainly did not feel that this was a sombre place full of people suffering various ailments. Maybe that is the general idea.

The other thing was that you would never guess that we were in the clutches of a serious epidemic as there was little sign of masks and social distancing was at best sketchy.

Steve P had kindly offered to drive me to the hospital and, as we were a little early, we had time to have a cup of coffee before I strolled off into the lion’s den.

The Radiography department was very sparsely attended and after a few moments in the waiting room and I was escorted into the inner sanctum where the PET scanner was situated. Lee, the radiographer, was soon apologising for a delay to the scan. The radioactive tracer had not arrived from Nottingham yet due to traffic problems. They would do all they could to speed things up but the scan could be up to 90 minutes late. By now I was imprisoned in what felt like a cell which had a heavy metal door and no windows. There was a reclining chair though and I was invited to drink plenty of water. The nature of the cell meant that there was no communication with the outside world possible as there was no signal for phone or wifi. Lee kindly offered to let Steve P know of the delay.

Fortunately, I had brought something to read so it really wasn’t that bad. Lee came in and fitted the tap to a vein in my arm and then left me too it. I am glad to say that the radioactive tracer finally turned up at 15.45 which was only 45 minutes late. The precious fluid was released into my arm and was left to circulate around my body. Normally 120 minutes is allowed for this before the scan but Lee was happy to reduce the time to 90 minutes to speed things up. I was then left until 17.15 and asked to drink as much water as possible and given permission to visit the toilet nearby whenever necessary.

Those 90 minutes really dragged but eventually the door opened and I made the short walk to the scanner room via the toilet. The scanner is very similar to the MRI scanners that I have suffered before. This time I went in fully clothed and head first. I also had to keep my hands and arms over my head as I entered the quite narrow tunnel. The biggest difference between PET and MRI was that this scan was almost silent. It is certainly just as cramped and now and then you do feel a little claustrophobic. I guess the scan took around 30 minutes but you do lose track of time. All the water that I had drunk started to put pressure on my bladder for the last five minutes or so and I was mighty glad when the scan ended. A quick visit to the toilet to release some radioactive urine and I was on my way.

Like the MRI scan the PET scan is something that you have to endure. You know that it will provide useful information that will help the diagnosis and therefore you need to man up.

So that is it – all the tests are done. Wednesday is just around the corner and my telephone consultation with my oncologist Dr. Palaniappan. I have a feeling in my water (no pun intended) that there will be some bad news and I am steeling myself for it. I have a feeling that lymphoma may form part of the diagnosis. Of course, I hope not but my overall tiredness and occasional night sweats and itchiness do make me wonder.

Well I will know soon enough. All this waiting and wondering has been getting me down that is for sure.



August 13th 2020 - All Systems Go for the PET Scan

I have now got a definite appointment for the PET scan. It will be on Monday 17th at 2.30 at University Hospital in Cardiff. This means that the first appointment with the oncologist can go ahead on the 19th as planned.

I must confess I have mixed feelings – the biggest part of me wants to know the extent of the cancer whilst there is still a gnawing fear of what terrible things the scan may reveal. It is like having a split personality which does increase the stress levels. The other thing in a similar vein is striving to make sure your public persona is positive and optimistic when deep inside you are fearing the worst. This is the lowest I have been so far.

On balance the sooner I get rid of the uncertainly the better but it does not stop me feeling terrified. I will know the grisly truth in six days time. 



August 6th 2020 - First Contact From Velindre

 Gemma had obviously stirred things up as I had a call from the specialist cancer hospital at Velindre. They had pencilled me in for a telephone consultation with an oncologist for August 19th. This was dependent on the PET scan being carried out at UCH Cardiff. This was hopefully going to take place on 13th or 14t August dependent on the availability of the special chemicals required. Progress!

With this progress, comes the ever dawning of the reality that this is life threatening however optimistic anyone tries to be. I am hugely worried about what the PET scan may reveal and it gnaws away at me like the disease itself.



August 5th 2020 - You Have to be Proactive

I had heard nothing from the NHS so decided to ring up to see what was happening. After initially leaving a message on an answer phone Gemma contacted me shortly afterwards (Gemma and Sian job share I think). Gemma would follow up the PET scan and the appointment with the oncologist. It seems to me that there is a need to be proactive when dealing with the NHS – communication is certainly not one of their strong points.

I read an article about the late Bob Willis who seemed to have a very similar story to me. It made me feel a bit gloomy. I also had a number of phone calls wishing me well – it’s great to have them but it is quite stressful. 



July 30th 2020 - Putting Things in Perspective

 I tried to go about my normal routine but the thoughts of the upcoming battle are never far from my thoughts. Even on the golf course I find myself now and then contemplating what lies ahead.

In the evening, I had a long conversation with a doctor friend who had gone through a similar experience a few years back. It was positive in that he was still healthy after a starting position which sounded far worse than mine – a much higher PSA (19) and a very high Gleason score. He had undergone radio therapy chemotherapy and hormone therapy and despite the unpleasantness of some of the side effects had managed to live a reasonably normal life. He did say that when it comes on deciding which of the treatment options to take that you can feel overwhelmed – and he was a doctor. He very kindly offered to accompany me when I saw the oncologist – this is an offer I might well take up.

This conversation certainly helped to put things in perspective. My overwhelming urge is a need to get on with it. Of course, I have the slow, grinding machinations of the NHS to contend with. I wonder whether my private medical insurance can help?



July 29th 2020 - It's Official I have Prostate cancer

 Well that’s it – it’s official I HAVE PROSTATE CANCER! I saw Mr Wilson who was certainly not all sweetness and light in his manner. “It is not horrendous”, was the best he could manage.

The tumour in my prostate is now confirmed and there was a sting in the tail. In the MRI scan an anomaly was spotted in my stomach close to where the main blood vessel joins it. They cannot identify what it is and this will require further investigation. This will be a PET scan which should be available in the next few weeks.

The rest of the conversation with Mr Wilson was certainly not very inspiring and pretty downbeat. I felt as if I was in a dream and did not really take too much in. There is a lesson here! – it might have been a good idea to have someone with me. The reality of course is I have cancer and although it is slow growing it is there and ultimately tit will be the death of me if it cannot be treated. Of course, I could decide to do nothing and, in his opinion, serious effects might not become apparent for two or three years. This is not in my make-up, however, and I want to get on with any form of treatment that will help.

Before any form of treatment can be determined, the result of the PET scan needs to be considered. Mr Wilson regarded radio-therapy as the most likely course of action. I will now be referred to an oncologist who will lay out the options available.

It seemed as if Mr Wilson could not wait to get rid of me – mind you, I wouldn’t be the one who has to inform patients that they have cancer with all the emotion that that stirs up. He introduced me to Sian who was to be the nurse specialist assigned to my case. Sian was very pleasant with a sympathetic manner and took me through the next phase of the treatment while filling in a form. I was given a very informative booklet about the various treatments.

To be quite honest I was desperate to get out of the hospital to have time to put my thoughts in order. Whilst I was rather expecting the diagnosis it still is a chilling experience. I am not a particularly emotional person but this shook me to my core. I would never show it to anyone else though!

When I got home, I made a few phone calls to nearest and dearest. This in itself is quite emotive but I had been determined right from the start that I would not be secretive about it. It is certainly not anyone’s fault or anything to be ashamed about – “shit happens”, as my old boss would say.

I have never actively asked for people’s help or support. I like to be independent but I have a feeling I am going to need all the support I can get.

Strangely my level of concern has dropped slightly now that I know what I face. What they find or don’t find in the PET scan is the big dark cloud that is currently hanging over me.



July 28th 2020 - I Finally Crack and Call the Hopsital

 As the four weeks of waiting for the results were nearly up, I plucked up the courage to ring up the hospital. My heart did beat a little faster as I waited for the phone to be answered. When a pleasant lady answered I asked whether the results of the biopsy had come back. After a few agonising minutes hanging on, I was told that, yes, the results were available. Even though I had agreed some time in the past that I was OK with hearing them over the phone, I was told that this was not possible and had to be done face to face. The good news was that due to a cancellation there was an appointment available for a consultation the next day. I was more than happy to take this up as the sooner I get to know what I am facing the better. The appointment was with Mr. Wilson which will be the fourth different consultant that I have seen in my four visits if you include the consultant that carried out the biopsy. What price continuity?

I wonder if I had not rung up whether the system would have finally moved sufficiently for me to be informed with any degree of urgency. The waiting seems to be the worst bit.

This means that tomorrow is D Day – I think the D stands for decision or maybe destiny. This is the most worried I have felt so far and I am sure the nerves will be jangling in the waiting room at 3.30 tomorrow afternoon.



July 22nd 2020 - Come On Give Me The Results

 Almost three weeks since the biopsy. The wait is agonising and the worry level seems to increase as we get nearer the date when I find out the result. Of course, there is no actual date just a very loose “three to four weeks”. This makes it worse as the days tick by. Not sure how I will be told – a letter, a phone call or face to face. If it is by letter it could be ages if the track record is anything to go by!

Life goes on of course and for long periods my prostate problem dwells somewhere in the dark recesses of my mind. Now and then it does spring to the front and a feeling of panic creeps in before I tell myself “don’t worry until you have something definite to worry about”.

I have decided that I will not be secretive about the issue as some people are. I don’t go out of my way to tell friends and acquaintances but if someone asks how I am I do divulge the current situation. I don’t want sympathy particularly I just feel if someone else has similar symptoms it might spur them on to get things checked out.

Rather morbidly I do find myself looking at obituaries to see what age the people are and what they died off. The other thing that plays on my mind is that my father died of cancer at the age of 69. It is hard to banish these negative thoughts.

I decide not to ring the hospital yet – I will wait until next week if I don’t hear anything.

Come on NHS let me know the score!



July 2nd 2020 - The Biopsy Is Pretty Unpleasant

 I turned up at the Royal Gwent Hospital on Thursday morning with my bladder comfortably full as requested. First job was to provide urine sample which fortunately presented little problem Others not so fortunate in the waiting room were having to drink water to try and deliver the required liquid. We sat, a disparate bunch, suitably masked at the requisite two metre intervals. As it always seems to be it was far too hot.

After around half an hour I was escorted to a small cell of a room to answer some questions about my general health. My answers plus the results of the urine test meant that I could proceed to the next stage – the biopsy. Before that I was given what seemed to be a pretty heavy duty dose of antibiotics to ward off potential infections. Then it was back to the waiting room with a biscuit to accompany the antibiotics.

Another half an hour passed before I was led to another room. This was where the procedure would take place. It was cramped particularly as I would have three people in attendance – the consultant, the radiographer and a nurse. The consultant gave a brief explanation of what was about what was going to happen which went in one ear and out of the other. Then without further ado my trousers and pants were around my ankles and was lying on my side on a bed.

The nurse was not quite holding my hand but was strategically placed to allay my growing anxiety.  Before very long it seemed as if a drainpipe was being inserted into my back passage. Not very pleasant I have to say although all you can do is b=grin and bare it in all senses of the word.

I was warned that the biopsy was about to begin and it felt as if a nail gun was being used inside the depths of my body. Despite some local anaesthetic it still gave a certain amount of discomfort as the samples were taken from that pesky prostate. Mandy the nurse and I talked about holidays whilst all this was going on in my rear end. It is rather incongruous but it was soon all over. My pants and trousers were raised to their proper position and feeling a little strange it was back to normality. I am not quite sure what I expected but I was told the results would not be available for three to four weeks.

I returned to the waiting room and was brought cup of tea and a biscuit. Another nurse took me through what aftereffects I might expect and also doled me out a course of antibiotics. The thought of blood in my urine etcetera was quite disturbing. I was then presented with another plastic jug for another urine sample. So it was back to waiting along with my fellow sufferers all sat with their plastic jugs waiting for nature to take its course.

Fortunately for me in my case this did not take too long. I duly delivered half a jug full about ten minutes later. As it turned out the nurse was not interested in the actual fluid but more that I was able to pass water. I felt quite disappointed when I had to flush it away and put the plastic jug in the bin.

This was the last act and I was now free to go. Since I was not allowed to drive and not allowed to use public transport, I has told the nurse I was going to call a taxi. She was not keen on this as it counted as public transport. She wrote me a letter to give to the driver if I felt poorly. In the mean time I had decided I was going to walk home. I had worked out if I took the lift up to fourth floor I would emerge from the hospital well up the quite steep hill that I need to climb to get home. From there it was only a fifteen minute walk and I felt fine. It would be almost as far to get to a taxi.

So this was exactly what I did and I was at home having yet another cup of tea before 11.00am. It probably was not a sensible thing to do but I felt none the worse.

As I reflected on what was a far from enjoyable experience, I thought just how pleasant everyone had been. Just imagine what spending your day peering up various back passages must be like. Hats off to them all.

As to the aftereffects of the procedure, I guess I must have been fortunate. So far, apart from a few spots of blood in the urine there seems to be little to worry about in that respect.

Of course, the big thing to worry about is what will the biopsy uncover. There is that agonising three weeks or so of not knowing the outcome to contend with. I guess I need to push that to the back of my mind if I can as worrying about it won’t change anything. What will be will be.

This is certainly easier said than done!



July 1st The Biopsy is Tomorrow

 Tomorrow is the day for the biopsy and the nerves are jangling a bit more. I have to confess it is playing on my mind and at times my imagination runs riot and I start thinking about the songs I would like played at my funeral. I need to now how I stand and what is the nature of the battle ahead.



June 26th 2020 - The Biopsy Is Confirmed

 Well the long-awaited letter finally arrived dated Jun 18th. This confirms that the biopsy will be on Jul 2nd. This included another copy of the details of the procedure and suggested I arrived at the hospital with “a comfortably full bladder”. I will also be given a course of antibiotics to accompany the procedure and cannot drive for 24 hours.

It all seems like a bit of a dream still and the full consequences have still not struck home. I have to confess that I am thinking about it a lot more though. The sooner I get to know the extent of the problem the better. Thursday cannot come quickly enough now.



June 22nd 2020 - I Keep Pushing

 I was fed up of waiting to hear from the hospital so I gave them a ring to hear what the latest situation was. I was told that an appointment had been made for the biopsy for July 2nd. A letter confirming this should be on its way – it is getting to sound like “the cheque is in the post”. Still it is good to know that some progress is being made even though the communications are far from perfect. The imminent biopsy had raised the level on the concernometer again as judgement day is now in sight.



June 20th 2020 - Next Appointment Confirmed

 The letter finally arrived (typed on June 8th!). This confirmed what I had been told over the phone. There was a document attached which explained the procedure that I was due to undergo. This was Transrectal Ultrasound Scan (TRUS) and biopsy – the procedure itself sounds quite bearable but there was a list of potential after effects such as blood in the urine etc which sounded unpleasant.

No date was given for the procedure so I was left to worry as the test was marked urgent.





June 10th 2020 - The Waiting is Agonising

 A week had passed since the MRI Scan and I really wanted to know the outcome. As I had heard nothing, I rang the hospital. I was told that DR Pandalai had written me a letter and that a biopsy was being organised as an abnormality in the prostate had been confirmed. This upped my anxiety level but I told myself that we still didn’t know what the issue was.






June 2nd 2020 - The MRI Scan

 So there I was waiting for my MRI scan with my face mask on securely. The scan was delayed due to an emergency case so I was left to think about the dreaded tunnel. I think I was more worried about making a fool of myself with a panic attack halfway through than the actual process. I told myself it is only 45 minutes and you just need to close you eyes and think of something pleasant.

Soon enough I was strapped into the machine and ready to go. It was much more open that my previous experience and I was told that thankfully my head did not need to go into the actual tunnel. No one could describe an MRI scan as a pleasant experience as you lie there unable to move for 45 minutes or so. Even though you are equipped with ear protection it is very noisy. The noises are weird and wonderful a mixture of a Soft machine concert coupled with a submarine sonar gone mad.

I was injected with various fluids to help the process which made me feel hot and cold. At last the ordeal came to an end and I was able to escape to the open air. The radiologists were kind and understanding but if I never have to have another MRI scan I would be mightily relieved.

Now it was a question of waiting for the results.






June 1st 2020 - The Tests Begin

 I had a phone call from the hospital to organise my MRI scan. I had had an MRI scan before and as someone who is a bit claustrophobic the very initials filled me full of dread. As it happened there was an appointment available for the following day so there was little time to ponder on my fears.




May 28th 2020 - The First Hospital Appointment

 The appointment was with Dr Pandalai an Associate Specialist rather than with Dr Carter the Consultant who I had originally dealt with.

My PSA level had increased slightly to 6.9 in the most recent blood test and the doctor carried out an internal examination there and then. He reported that he could feel a small abnormality on the prostate.

He explained the course of action that he proposed. The next step would be an MRI scan which might then by followed by a biopsy of the abnormality. This would then determine the treatment that might be required.





As you might imagine, my level of concern increased significantly. I told myself there is no point in worrying until you know exactly what the problem was. Easy said than done of course.





May 5th 2020 - A Letter Moves Things on Unexpectedly

 Out of the blue, I received a letter from the specialist asking me to get a repeat blood test organised with my GP. They had reconsidered the position concerning the impact of the COVID 19 pandemic and felt that it was now safe to resume more normal operations. I duly organised the blood test and rang the Urology Department to tell them that it had been done.





I had a phone call a few days later and an appointment was set up in the hospital for the May 28th.

April 2nd 2020 - A Letter Eases My Fears

 I had a letter from the consultant who had reviewed my case. He noted a marginally elevated PSA level. The prevailing pandemic meant that patients in my situation were being asked to have a repeat blood test done in six months as it was considered that the risk of contracting COVID 19 during a hospital visit presented a higher risk than the raised PSA level. I felt a certain amount of relief as the situation did not seem to be too serious if this sort of delay was considered to be OK.





I put the issue to the back of my mind and noted the need to get another blood test done in late September.

February 2020 - How it all started

 It started as it must have in thousands or even millions of cases. I had become used to having to get up in the night for a pee but then it became twice or sometimes even three times. I am an active sixty-seven year old who is reasonably healthy if a little overweight. I was certainly aware of the prospect of prostate cancer which comes to males as their age advances. Indeed, a number of colleagues and friends have developed the cancer and some had even paid the ultimate price.

As one does these days, I checked the internet and it was clear that the urge to pee was certainly one of the telltale signs of prostate problems. Without further ado, I booked an appointment with my GP. Too many men I fear do not react quickly enough and it was clear that if you had a problem the quicker it was detected the better. I had been tested a couple of years before and pronounced OK after blood test and internal examination but the urge to pee had certainly got stronger.

The outcome of that initial appointment was a blood test which would be followed up by a further consultation to discuss the results.

The results showed a raised PSA level 5.9 from memory and the GP conducted an internal examination and could not feel any obvious issues. A repeat blood test was organized a couple of weeks later as I was told that the PSA check was notoriously unreliable. The results of this check came back slightly higher at 6.7.

By this time COVD 19 was becoming rampant so the results of this test were discussed with a GP over the telephone. Whilst the results of the test were not very high, the GP was concerned that the PSA level had risen and took the decision to refer me to a specialist in urology in the local hospital the Royal Gwent.

I have decided to record what happens next in the form of a diary in case it might help others who find themselves in a similar situation. I have also decided to develop a simple scale (the concernometer) to indicate how I am feeling. This will go from completely happy through levels of concern and worry to being absolutely petrified.



At this stage I was concerned but was not losing any sleep about it.


 

PSA Still Undetectable and Diet Having Positive Effect

Just had my latest check-up and I am delighted to say PSA is still undetectable. I have indeed decided to do something about the weight gain...